Just a simple family's experiences with what the doctors said could be a child with Trisomy 18, and ended up being Easton.

Wednesday, August 7, 2013

Bundle of hyper joy

We're a little late in posting this, but wanted to share it anyway. Last month we took the family to spend a week camping on the beach. Every time Easton saw the waves he would reach out as far as he could, then flap his arms up and down excitedly and clap as loud as he can. What a joy it was to see such excitement and joy in such a little package! I loved taking him down to see the waves, something about it just invigorated him, and seeing his reaction lifted our hearts as well.
What a blessing children are to us old geezers. :)

Finally crawling & getting surgery too

Easton started crawling this week. Yay!  He's still a little behind in his development, but he is catching up!  His crawling is a little disjointed, probably because of his hip dysplasia, but having him wear his hip brace at night is working wonders.
On the flip side, he had a kidney scan this week.  His left kidney is doing great, and they both are functioning well, but his right kidney is draining less than it used to (which wasn't very much to begin with).  The Dr. wants to do surgery to remove a section of his ureter tube (which may have a blockage) & reshape his kidney.  He should be in the hospital for about 2 days.  The Dr. said Easton would have a tube coming out of his kidney which would drain into his diaper for 10-12 days until his body heals from the surgery.  We wonder how that will affect his crawling.  Who knows.  An interesting side note - we realized all his issues seem to be affecting mostly his right side - right kidney, right teste, & right hip.  We don't if that means anything.  He likes to "Choose the Right"  that's for sure.
Thanks again for all your thoughts & prayers!