Just a simple family's experiences with what the doctors said could be a child with Trisomy 18, and ended up being Easton.

Tuesday, September 10, 2013

The Power of Home

Amazing. Just amazing.
Easton spent 4 days in the hospital (2 more than he was supposed to thanks to a nicked colon), and moaned and whined whenever it was time to get another pain medication. He was in such pain that he just laid in bed all day and barely moved.
Then we brought him home, set him down, and off he went, crawling and climbing over everything like he never had surgery. That's the power of home. A home filled with love brings peace to the heart and healing to the soul. It gives hope. It's a familiar reassurance that loved ones are near and all will be well.
Indeed, as the hymn says, "All the world is filled with love, when there's love at home."

Tuesday, September 3, 2013

Wow! You're kidneys are beautiful!

Said no one. And yet, we just paid for a cosmetic surgery to fix how Easton's Kidney looks. Crazy? Probably. But then again, we're parents. We're supposed to be a little crazy.
In truth, however, the surgery was less for how the kidney looks, and more about how it is shaped, and thus functions. He's just now waking from a 4 hour surgery to remove the blockage in his ureter that's stopping the kidney from draining properly. Because of the stoppage, the kidney ballooned out and was deformed, needing some reshaping.
During the process they accidentally nicked the colon, but fixed that and hopefully avoided any infection.Don't worry,  It just required a stitch or two. He's not a semi-colon now or anything :) unfortunately since they nicked the colon we need to wait till he has a bowell movement or passes gas before he can eat. We're told that could take anywhere between a few hours to a week. I guess whenever your intestines are even touched, they go into sleep mode and take a while to wake up. It is helpful to get up and move around, but he'll be somewhat limited in what he can do as he heals.
They also were able to find the hiding, right teste and, wonder of wonders, it was still alive and they were able to pull it into place.
Overall, things seem to be going well. So grateful.