So, after two days of anti-seizure medication, the seizures have dropped down to a few a day (that we've noticed, they're easy to miss). So it would appear that the medication is working . . . but we've heard from people that the medication doesn't make you feel very good. Some say it gives the "gloom and doom" sensation. We've noticed a decrease in smiles--he's never really reacted too much to faces and efforts to make him smile, but it's gotten worse with this medication (or maybe he's just holding a grudge against us for making him endure another catheter episode).
So, my question is this: Do you, or anyone you know take seizure medication, and if so, does it have bad side-effects like making you not feel well. We can't really ask our 6 month old how it makes him feel, so we need your help. And in truth, since the seizures aren't bad ones, and don't effect his brain (doctors say) and he can still breath since they're so short, would it be better to have the seizures than a medicated 'doom and gloom' feeling?
On another note, more tests are being run. Today we took him up to Primary Children's Hospital again to have some blood drawn. I think they're sending this one to Maryland to be tested.
Again, thanks for all the prayers and concern. We love you all. We feel so blessed to have such great family and friends, and to have our little Easton in our family.
I've taken anti-seisure meds, and noticed no symptoms of that nature. (I'm a friend of Angela Wendel.)
ReplyDeleteI only know of a smal experience a friend had recently. She has a benign brain tumor and mentioned that the coctail of meds she was taking, including the ASM, caused her to loose balance and fall down the stairs. She has opted to discontinue the ASM.
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