Just a simple family's experiences with what the doctors said could be a child with Trisomy 18, and ended up being Easton.

Monday, December 10, 2012

My kid's missing his Hypsarrhythmia

Hypsarrhythmia? No that doesn't mean my kid lost his rhythm in his hips. Be serious here, he's my son. Of course he has rhythm in his hips. No, Hypsarrhythmia means a specific irregularity in your brain waves. And, believe it or not, even though it's a pretty cool word to say, it's not good. So not having it is a pretty good thing.

You see, he had it, and his little infantile spasms, and developmental stop came along with it. But he's been on medications, and has been under the watchful eye of our Heavenly Father, and now, they're gone. Which means we can wean him off of his steroids, though he'll stay on the anti-seizure meds for a while longer. 

Now, to be fair, there is a pretty good chance it will come back, and he may struggle with this for a while, but for now, they're gone. 

And, cue the celebration band.

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