Just a simple family's experiences with what the doctors said could be a child with Trisomy 18, and ended up being Easton.

Thursday, May 16, 2013

Time Flies

Wow, I can't believe it has been a year and a half since we started this adventure with Easton's first ultrasound.  It sure has been a huge lesson in patience and it continues still.  He just had his first birthday and is doing better than ever.  He is down from 5 medications to 1, his kidney reflux has resolved, and he hasn't had a seizure since December.  Plus, he is finally sitting by himself (with pillows around him).  Yes, he is still behind but is making progress everyday!  He is such an easy going boy, with the cutest smile & laugh - it makes all our troubles & worries with him worth it.  He is like sunshine to the soul.
He had surgery a month ago on his manly parts, and everything has healed nicely.  His left side was brought down, but his right was still up too far.  The doc had to connect new blood vessels to the right and hope it survives.  Easton had a follow up on surgery today and he will have another kidney scan in a few months.  If his kidneys are still draining too slowly he'll have surgery on them along with his right teste.  Besides that we just continue to have check- ups with his 5 different doctors.  We're so glad we have such wonderful doctors to help us out and keep our Easton healthy.  We feel so blessed!

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